Lucy’s Story

Johnson Family Back row: Gordon & Karen Front row: Lucy, Ben and Julia

Johnson Family
Back row: Gordon & Karen
Front row: Lucy, Ben and Julia


Editor’s note:  Lucy’s mom – Karen Johnson – shares why her daughter’s  story is an inspiration for her and for everyone who meets Lucy.  You can support Lucy as she walks in the Winter Walk on January 18, 2014 to help others in Northeast Ohio with Epilepsy.

Lucy is an inspirational 9-year-old.  She developed Epilepsy when she was 2-years-old.  Because of her numerous seizures her development is delayed. Lucy has never let any of her medical or developmental struggles stifle her tireless spirit.

Lucy is an advocate for epilepsy awareness.  She was an enthusiastic Purple Day volunteer in 2012.  She even attend the Purple Day Party in a purple costume.  She has been an Epilepsy Association eRacer , the Epilepsy Association’s Charity Running Team, for the past three years.  In 2012 she raised the most money of any runner under the age of eighteen.  She enthusiastically spoke at the 2012 Gala to share her story and spread awareness.  Instead of feeling sorry for herself, Lucy has embraced the chance to make a difference in the lives of other people, especially children, struggling to live with Epilepsy.

Lucy is an inspiration to other families of children with Epilepsy, not just because of her advocacy but because she has never allowed herself to think she can’t accomplish something because she has Epilepsy.  She is a competitive swimmer which is amazing for someone who used to have 50-70 seizures daily.  She has performed in two theater productions for Heights Youth Theatre despite the fact that memorizing song lyrics is very difficult for her.  Next summer she plans to train for and compete in her first triathlon.

Lucy’s spirit and love for life is contagious.  She enjoys making other people in her life happy and feels that her efforts through the Epilepsy Association are helping other children with Epilepsy live happier lives.

We are supporting the 2014 Winter Walk for Epilepsy because the Epilepsy Association is providing services that have helped my family learn to deal with the challenges of Epilepsy.  We hope you will support this very worthy cause too.

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